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FORWARD TOGETHER: A REPORT ON CYSTIC FIBROSIS CANADA’S IMPACT IN 2023-24

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Cystic fibrosis occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis (one from each parent). 73.5% of Canadians newly diagnosed with cystic fibrosis in 2019 were diagnosed through newborn screening Of the Canadians with CF who died in the last three years, half were under 34 years of age
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CF Champions
Gillian Maramieri
Caledon, Ontario

Gillian Maramieri has been involved with Cystic Fibrosis Canada for 10 years and is a working mother of two boys. Her youngest, Matthew, has cystic fibrosis and was the first to be diagnosed with CF in the family. He was diagnosed at birth after Gillian’s doctors noticed an echogenic bowel 18 weeks into her pregnancy. Her first words after the diagnosis were, "Ok, now what do we need to do?"

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